Table 2 Challenges and barriers to ACP Challenges to ACP Participants highlighted concerns about the timing of ACP and the relationship between their responsibilities towards patients in the ACP process and the responsibilities of other staff: I found it interesting, on a GSF form in one practice we’ve got preferred place of

death, and Inhibitors,research,lifescience,medical often the GPs will say ‘oh no, it’s too early to talk about that yet’ (District Nurse). But when do they need it? Is it from diagnosis? And I think that’s the difficult thing because obviously consultants don’t have time to do it, registrars in hospital don’t have time to do it, and obviously it comes down to [Macmillan] nurses doesn’t it, [or] support nurses within the hospital, because that’s usually where the diagnosis is made (Macmillan Nurse). Participants observed that in their experience GPs are often reluctant to consider and discuss specific decisions relating to ACP with patients or their representatives, whether in the community

or in care homes. It was felt that this reluctance arose from Inhibitors,research,lifescience,medical discomfort Inhibitors,research,lifescience,medical among GPs about raising any ACP issues with patients, for fear of raising issues about the end of life ‘too soon’. Nurses with responsibilities for patients with non-cancer long term conditions were especially aware of the issue of timing, given the difficulties of prognostication in the latter and the risk of raising issues about end-of-life care at an inPemetrexed appropriate time that would harm the patient and not be congruent with their coping strategies: Inhibitors,research,lifescience,medical Patients with heart failure and COPD may be living for 10-15 longer years. So I suppose it’s pitching just when it’s appropriate to have those dialogues, and I think it’s different for every person, and I think the same as has been said earlier that there are some people who are going to be very happy,

for want of a better word, to discuss that, and there are other patients who don’t want to go there (Community Matron). In all the focus groups, concerns Inhibitors,research,lifescience,medical were raised about the bureaucratization of ACP leading to a potentially blunt, harmful Cell press ‘one size fits all’ approach: … what I have seen unfortunately, is sometimes it’s used as more of a checklist, you know, with tick boxes … (End-of-Life Care Programme Facilitator). One Macmillan Nurse perceived there was a danger that if nurses and other practitioners were encouraged to regard ACP as a set of procedures or a ‘check list of questions’ this could effectively subvert the goals of good end-of-life care practice: patient centred care and communication guided by expert clinical judgment. Nurses also perceived that the wider rhetoric surrounding ACP directed the focus of what practice was in existence towards instructional directives (‘advance decisions to refuse treatment’), even if these might be of little relevance to the concerns of most patients.